"We have a lot of information to share with each other". Understanding the value of peer-based health information exchange

Introduction. This study investigated whether rural people with HIV/AIDS (PHAs) exchanged information with their peers, and why they valued this process. Method. In-depth interviews and personal social network solicitation were conducted with 34 rural-dwelling PHAs in Canada. Analysis. Personal networks were analyzed statistically. Interview transcripts were coded using the constant comparison method. Data were analyzed with the aid of social comparison theory and the concept of ‘experiential information’. Results. Most PHA participants were connected to at least one peer, and many had increased their contact with other PHAs after their diagnosis. PHAs valued peer-based information exchange for: the experiential information content that they shared; their practical and emotional uses of this information; and the positive feelings generated by interacting with peers. Conclusions. Experiential similarity may predict interpersonal information seeking when people are under illness-related stress. Given its perceived value, peer-based health information exchange should be supported. Implications for information practice are discussed.